Wednesday, 21 December 2016

Been to see consultant about pain

I try and carry on regardless I have had multiple sclerosis for getting on twenty-five years and I try and fight it, don't let the bastard get you down type of thing. But lately I have been in a lot of pain. To me the only time you complain about pain is if you hit your thumb with a hammer when bashing in four inch nails, the you end up with a lump out of your hand and some blood to show for your pain. I don't show pain not even when I fell off a ladder and had bone sticking out of my shin, "just a skin wound I can carry on". But of late I have been knocking back painkillers like smarties. I hurt, I hurt all over nagging constantly away at me. Not a real pain no blood or Gore to show for the constant never ending throb. I I stop to consider where it hurts it's all over. Some places hurt more than others at different times. It is relentless it don't go away but although it hurts and I am taking tablets to take the edge off it will it go away? no.
I spoke to the MS consultant when I last went for my botox injections and she referred me to see this pain man. Well along the way the lines got crossed. I ended up with two different appointments for two different places. One was for group therapy, pain is an individual thing and I know the expression "a problem shared is a problem halved" but when it comes to the throbbing pain under my skin I don't think talking about it will help. Can you imagine it, sitting round in a room like the local branch of Alcoholic anonymous and say "hi my name is Don and hurt"!!! Not for me, sharing might be caring but I want to get rid of the pain I know talking about it won't make it hurt less.
So on Tuesday I ended up at outpatients in Canterbury hospital seeing a very nice man who gas given me some anti epilepsy drugs to try and shut down the nerves that are hurting. All the other stuff I have tried has had horrendous side effects and he said don't start on them until after Christmas because he didn't want me having problems that spoil Christmas. Nice. So that's me all up to date. MERRY CHRISTMAS EVERYONE!

Monday, 5 December 2016

the empowerment plan


Sunday, 4 December 2016

Snooker has finished what can I do now?

I hope you have all been busy watching the snooker over the last two weeks? I have loved it, every afternoon fast asleep er no sitting in my wheelchair avidly watching snooker. I must admit to a few lapses in concentration and catching a few zs. I even lost two frames of this afternoons final. But I had taken painkillers and they make me sleepy! Mark Selby made a fantastic champion and now it has finished what can I do? I am going to try and improve my painting skills, that won't be difficult because my skill is zero so getting paint to paper  Will be an improvement. Also I have charged the camera battery so all I  need is some enthusiasm for either painting or photography.
My son suggested I take pictures of my paintings which will cover all bases! I haven't been out for a couple of weeks so with this week set dry and Heather over her flu we might try and visit somewhere quiet and have a bacon sandwich or maybe some fish and chip's. See the world is our oyster!

Thursday, 1 December 2016

Multiple sclerosis: Newly discovered signal mechanism causes T cells to turn pathogenic

Multiple sclerosis: Newly discovered signal mechanism causes T cells to turn pathogenic: Multiple sclerosis is an autoimmune disease in which the body's immune system attacks the patient's own cells. In this case, modified T cells destroy the myelin sheath surrounding nerve cells. Myelin protects the neural pathways and is thus essential to the ability of nerve cells to transmit information. A recent study has demonstrated that a substance known as interleukin 6 (IL-6) plays an important role in instructing T cells to cause damage to myelin sheaths in the central nervous system.

New Multiple Sclerosis treatment wins £1m funding

New Multiple Sclerosis treatment wins £1m funding