Monday, 31 October 2016

Catheter change

My catheter has made my life so different. We worked it out today it must have been over eight years ago that I was first using an intermittent catheter. Self administered catheter to ensure my bladder was fully emptied, then I had an indwelling catheter, a ureatheral one. I had lots of problems with that. I had regular infections and every time the nurse came to change it I was hospitalized due to bleeding. The nurses must have detested me. Well about four years ago I had a supa pubic catheter put in, it was done under General anesthetic. Fantastic, over night I went from countless urine infections to maybe one a year. So if you suffer like I did with bladder problems do not despair, ask your GP to refer you to a continence nurse and hopefully you will be as lucky as me and you will get your life back. Multiple Sclerosis messes with your body and has taken away my functions I can't pee and I can't poo but the continence nurse has given me the ability to overcome those problem.

Sunday, 30 October 2016

Disability and wheelchair accessible car makes walk easier

What a beautiful day here in Margate. A bit of sea mist, well actually more than a bit I couldn't see the wind turbines nor many ships . But when the Sun did manage to burn it's way through the clouds it was very warm for the last weekend in October. Now that we have a wheelchair accessible car or WAV as it is described on car websites it makes getting out so much easier. I even joined Heather on a trip round Sainsbury last week, previously I might have gone with he but sat in the car park whilst she got to visit the wonderful delights of the chosen supermarket. See not having to transfer into the wheelchair has made my life not only much safer but opened whole new horizons to me.
Today's horizons were not shopping based but brisk sea walks. We headed over to Deal and parked at Walmer near to the castle and headed back towards Deal. I had my camera with me and was able to snap away to my hearts content. Beach huts, benches (I love a photo of a bench) the lifeboat station and the fishermen shacks maybe they were to posh to be shacks but I am using poetic licence here. We got almost to the Martello tower before heading back to the car and a picnic lunch. Nothing exciting nor expensive but to Heather and I being able to do such a thing was priceless. My MS has got to the stage where I am unsafe transferring from car to wheelchair and had all but given up going out so the wav has transformed our lives, even if that transformation means the occasional trip to Sainsbury. (I actually quite like it but don't tell Heather)I wonder where we will go tomorrow.

Friday, 28 October 2016

Weddings wheelchairs and WAV`s

Been out to a wonderful wedding today, full on  fun. Great time great friend's and marvellous food. It was made so much easier by being able to stay in my electric power wheelchair. We now have a wav. Wheelchair adapted vehicle. Just drive in and out! So  much easier for not only me but Heather as well. No fear of me falling trying to get out of the car or Heather having to push me everywhere. I was able to move about and seek out who I wanted to talk to and chat to people without needing Heathers help. Independence, you can't beet it

Wednesday, 26 October 2016

Learning to paint with water colours




I wrote earlier in the year that I had got myself a journal and was trying to write and draw well I have now gone one step further, I received a set of water colour paints for my birthday. I had asked for them so it wasn't that much of a surprise but when I got them but I didn't have a brush. Oh I have house paining brushes in the basement from my life before MS yes I used to be capable of climbing ladders and painting windows and gutters but there is no ladders out there designed for wheelchair based house painters. The brushes I wanted didn't measure in inches and they had fewer hairs. Due to circumstances I have not managed to get to the shops and ordered a set of brushes from ebay. Well it was actually three packs of WH Smiths brushes sold for one pound fifty. It may sound like I am a cheapskate but I intend going out and doing an art shop for all the stuff I need.

My Pint set

My first attempt at art since school 45 years ago

I wanted to paint a get well card ( I had to send it coloured by pencils) because the brushes arrived to late. You can see my first attempt in the second picture, it is a discarded practice of the card I drew. So what I need to do is get out and purchase some supplies for my new hobby.

Sunday, 16 October 2016

Exhausted after birthday celebration

Yesterday started off with a birthday breakfast at Taddys tea rooms. I had full English. I like it there nice food nice staff  and nice surroundings. I came home from there and had a couple of hours in bed in preparation for the main event a double celebration in the evening. Not only were we giving praise for the fact I had reached my sixty first year our eldest grandson had passed his Kent test and was off to Grammar school. Chinese food all round much fun and laughter and a  glasses of red. Well it's not every day your grandson gets to celebrate with his grandad.

Wednesday, 12 October 2016

Another day another hospital appointment

It's Wednesday that must mean Canterbury hospital! It has been a bit like that lately, today was an appointment with the specialists at Canterbury. I got to see the MS nurse and also the specialist physio nurse. They are both fantastic and have sorted so many different things for me over the years. My first MS NURSE retired about ten years ago and her replacement swopped with my current one because it made logistical sense they were literally passing each other going in opposite directions each morning, by swooping they are both now working their home patches. Well we caught up on what has been happening. How the boric has worked out did the new painkillers work etc. The answer by the way was no, I have a very sensitive bowel and tablet changes often result in unwanted side effects.
The result of all this was I am going to get a call from the pain clinic. I am maxing out on painkillers most days and pain is in itself debilitating. Fatigue levels of late have been awful and it has made quality of life pretty boring. Still it sound as if I am moaning, I am not its just putting the facts down, moaning about it won't change anything. We left Canterbury and then headed to Whitstable to check out a venue where we are visiting in a fortnight time. We drove past the turning twice so just as well we did a reccee we will find it on the Day now. After that we headed homewards having skipped lunch we decided on fish and chips in Sandwich but Heather needed to nip home first. I stayed in the car whilst she went in and retrieved the washing she was worried about, by as she was leaving the house she answered the phone. I saw her again about thirty minutes later. Thank goodness for car radio's I sat in the car being tortured by the newspaper just out of reach in the back of the car. I was delighted to see Heather when she got back in the car.
Fish and chips were delicious we sat in the car catching up on today's happenings eating and drinking Aloe water, our vicar New my liking for it and had bought me two bottles yesterday, he can't stand the stuff and bells me aloe pulp in water is disgusting but I don't care what he thinks I love the stuff. Well that's my news, I doubt I will post anything tomorrow as it is my Birthday and I will be otherwise occupied eating cake and bacon sandwiches etc.  etc. Night folks.

Check out your home insurance

I was coming up to bed in the through floor lift tonight and got to thinking house insurance! That lift is worth almost as much money as we paid for the house a lot of years ago. Tomorrow when I get up I am checking the house insurance, it's no good thinking oh I must be covered because insurers find ways not to cover you. So I will be on the phone asking them not trying to read the small print and second guess them, I want to know.

Monday, 10 October 2016

Oh Botox

Yep it was botox injection time again. Last Friday! The whole day spent traveling and half an hour being checked and injected. The two complete days in bed sleeping unroll late in the afternoons just getting up in time to eat catch a bit of TV and sleep again. Two days of virtually continuous sleep approximately twenty hours each day. Multiple Sclerosis messes with my body big time. Today I was awake at 05:30 and have been awake all day. It is now 23:00  and not really tired hence blogging now in bed using my kindle.
The injections are supposed to reduce the tone in my hamstring muscle and enable better movement in my legs. It does work but not terribly well. I am hoping this round will be more successful,  I will keep you posted, watch this space.

Big Boys Toys at new addition to Benridge Care Group, Asmall Hall care home




I opened up my inbox and was greeted by the sight of Bill playing on a mini-digger sorting out the new fences at Asmall Hall, the latest care home in the Southport Area of Lacashire to join the Benridge Care Group. Asmall Hall  Asmall Lane Sarisbrick Ormskirk L40 8JL ofers EMI care both as residential and also respite care. Visit the Benridge Care Group website Here
Or look at the Benridge Care Group Facebook Page
if you or your family are considering EMI care contact
Good Companions 113 Roe Lane Southport PR9 7PG Tel  01704 220450

Asmall Hall  Asmall Lane Sarisbrick Ormskirk L40 8JL Tel 01695579548
Image
Bill at Asmall Hall photo courtesy of ON THE SPOT NEWS Southport

                                      

Read about the Makeover at Asmall Hall here on the OTS News Website
Follow OTS ON TWITTER
Follow OTS ON FACEBOOK

Big Boys Toys at new addition to Benridge Care Group, Asmall Hall care home

I opened up my inbox and was greeted by the sight of Bill playing on a mini-digger sorting out the new fences at Asmall Hall, the latest care home in the Southport Area of Lacashire to join the Benridge Care Group. Asmall Hall  Asmall Lane Sarisbrick Ormskirk L40 8JL ofers EMI care both as residential and as respite. Visit the Benridge Care Group website Here
Or look at the Benridge Care Group Facebook Page
if you or your family are considering EMI care contact
Good Companions 113 Roe Lane Southport PR9 7PG Tel  01704 220450

Asmall Hall  Asmall Lane Sarisbrick Ormskirk L40 8JL Tel 01695579548

Image
                                      

Read about the Makeover at Asmall Hall here on the OTS News Website
Follow OTS ON TWITTER
Follow OTS ON FACEBOOK

Tuesday, 4 October 2016

Oh Botheration

Not a good day today, I don't know whats up but I just cant seem to get going. Everything is to much trouble I just ate an apple because it was nearer than going to the kitchen to get something else. As I say I don't know why but I am peed off! I have sat here listening to music but now the speaker has gone flat I can't be bothered to plug it in to recharge it. Yep thats about the length of it I CAN NOT BE BOTHERED


Monday, 3 October 2016

Walk to Cliftonville, haircut and count ships

Yep the title pretty well sums up my day. I have needed my hair cutting for a week or more and today was fine dry and warm so we decided to walk to Cliftonville and visit the hairdressers. We went to our normal one but no joy they had no slots for over an hour and a half and we were a bit pushed on time. Having put in the effort, well Heather did the physical effort mine is more mental effort, keeping myself in the wheelchair and not crossing in front of any cars or lorries! We decided to try another barber's and trundled along to the on me near Saint Paul's Church I think it is called Hasains or Nazers or something. The lad who cut my hair said he was going back home to Turkey so I imagine they are Turkish, powers of deduction I should have been a detective. Well I had a haircut and a beard trim and he shaves with an open or cut throat razor and it was fantastic, I have a mate who is a barber himself who travels from Whitstable to have a shave and hot towel facial so maybe they have gained another customer.
We left the barber's and headed towards the sea so I could count the number of ships, twelve if you are interested. We then headed back home as Heather was needed on Grandson duty. Half way towards home the grandson duty was cancelled. Still it introduced me to the delights of a Turkish shave and taught me never to have a nostril wax, the screams of the lad foolhardy enough to think it a good idea will live with me for a long time. I may have changed barber's but call me old fashioned if you like but I am not into waxing.