Thursday, 25 August 2016

A big juicy marrow bone for a poorly Frazer

No words needed
Give him a big hug from me and all of us on the board XXX thinking of you and Him

Trials and Tribulations of Multiple Sclerosis

I was diagnosed over twenty years ago and over those years I have riled against each new symptom with all of my available energy. I have over come weakness by using tools, first walking sticks, one at first and the two, the same with crutches. At each turn i had to find some way to accommodate and then overcome best as possible. I have had walkers and zimmers wheelchairs and scooters and each has fulfilled a need at a stage in the progression    of my MS. I  have never had a relapse my MS is called Primary Progressive MS which means I have been in a gradual decline for over twenty years. I am now in a power wheelchair full time because I can only do a few steps with my zimmer frame, on a good day I might manage a dozen steps on a bad day zero and even getting out of bed proves a fruitless task. But we all need to get out of bed at some stage to visit the bathroom and on bad days my wife will struggle to get me into the push wheelchair to negotiate the few feet across our landing.
This brings me to the real reason of this blog post MEDICATION.

Yep I need my medication to try and enjoy and if not enjoy, to endure my day to day life. I take antidepressants to keep me from sinking into depression and they are the two most important tablets I take each day. Depression is a bitch! it will rob you of the joy of life and leave you under that black cloud unable to understand why you feel so sh*te. Depression is like a fog that never clears and everything looks murky and distant. But I found that owning up to the fact you are feeling dismal or even suicidal and seeking help is like a weight has been lifted and then a sliver of sunshine entered my gray world and eventually my days went from mono tone to full on colour. Don't get me wrong I still get bad days but they are the exception not the norm. Other tablets I take are painkillers, and one bad side effect to any pain relief is it can cause tummy problems. Constipation or diarrhea are two extremes and all manner of aspects in between. I recently changed pain relief and the first thing it did was yes stop the pain but it upset my tummy. Now as I mentioned I can barely walk and have a wheelchair and a trough floor lift, the lift was a result of falling whilst trying to get on the stairlift.
Speed is of the essence when you get the desire that you really need the toilet and I just aint speedy anymore, so after five days of trying the new tablets I had to admit defeat  and go back to my old painkillers. So the moral of this story is this, if for any reason you change or start new tablets BEWARE you could end up with unintended consequences, if you become constipated take some form of laxative and if it is the opposite stay close to the loo. 
How will they affect me
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