So on the way in and on the way out I am fighting with my body and my brain. It's exhausting! No wonder for the next few days I suffer from fatigue. It's exhausting enough on a day when I am not going out but then you add extra into the equation I know when I get home it's going to take a few day R&R to get my body back to a sensible level of exhaustion. Fatigue is not just feeling tired it is much more complex, I am way past tired, I feel tired all the time, every minute of every hour of every day I struggle with feeling tired, I am writing this laying in bed and I am tired and I know I will feel just as tired tomorrow when I wake up. But my MS fatigue is every muscle and every sinew wanting to burst to break and say NO MORE but I have to disappoint them because I still have a life to live and fatigue management is how I roll.
I wish I knew how I manage, I just do. I have a fantastic wife who looks at me if we are out like we were Sunday and she says home. And whilst I won't and don't want to give in I know that she is right. I could have stayed but I would have had to pay the price. It would have taken even more time to recover. It's all about obtaining the right balance.