Saturday, 11 January 2014

Multiple Sclerosis messes with me

Today started badly. 9:15 am fast asleep and the phone wakes me from my deep sleep. The offending item lives beside my bed  but my body refuse' s to move fast enough to get it. Now wide awake and because of the shock and struggle to answer it my body reuses to behave. This goes on for another two hours before I can finally make it downstairs. Lunch a wonderful bacon roll made by Heather and because my body will not behave I decided not to go for the ride out we had planned. Bowel problem' s mean I miss out on a great deal of things. Today is no different other than I feel like crap as well. I am not sure why my body won't even work to its normal miserable self. When this happens you cannot change things just hope it's not permanent. I am now in bed typing this on my kindle as I watch match of the Day. More pain killers  and the my sleep apnea mask on and sleep. I just hope tomorrow work's out better than today, and the phone will be closer but when you prepare for it I doubt it will ring. I am blaming the phone for my rubbish day but the real culprit is N
Multiple Sclerosis it wrecks lives and it is wrecking mine one day at a time.

Tuesday, 7 January 2014

Promote Thanet: WaterAid for life

Promote Thanet: WaterAid for life
 http://www.wateraid.org/uk
We might be flooded and the United States freezing but people are dying for lack of clean water everyday. Help is needed now. www.wateraid.org/uk

Monday, 6 January 2014

recuperation takes longer

I was discussing this with my brother in law tonight, the older you are the longer it takes. I had my fall last week a day and a half in bed and then up and at em. Well I thought I was! How wrong was I, last night I couldn't stand up, it took super human efforts to get from settee to wheelchair and even more getting on and off the stairlift. I know I hadn't done much during the day but my body was letting me know that it didn't like it. Recuperation takes time, I didn't do much yesterday by normal standards, but my body has Primary progressive Multiple sclerosis which is anything but normal. It takes longer to recover, I did watch a bit of football yesterday all part of my recovery you understand. Well after getting up and going out for a pleasant ride in the car I watched a couple of football matches, soccer to those who read this stuff in Canada and America. Well cutting to the chase I saw what at the time was an unremarkable injury to a player an athlete who is young and at the top of his game. That unremarkable little incident will keep him from playing competitively for six months. According to the news he will be out of the world cup.
And here is me a 58 year old unfit wreck of my former self wondering why I have had to spend another day in bed again today recovering from my fall. The recuperation is the hard part getting injured it seems is as easy as falling of a log or in my case  a chair. The human bodies ability to let you know it is not ready to do what you demand of it day after day should not be underestimated. I know I hurt myself yet I still expect to be back to normal, now please bear in mind my normal is way way below a normal everyday healthy bodies normal. SO if a young lad whom Arsenal football club pay millions to be fit and healthy takes six months to recover why am I surprised that after such a short time I cannot stand up let alone play football. 

Sunday, 5 January 2014

Bed rest to recover and recuperate

My MS hates trauma and for the record so do I. Trauma usually involves pain and whilst I have a high pain threshold I try and avoid getting hurt. Well yesterday I couldn't avoid the pain, and when it arrived if was fast and furious, note to self that would make good title to a computer game ( only kidding) .I was sitting in the bedroom waiting for my wife so we could go and get breakfast, the TV was on and I was glancing at a camera magazine and I saw he phone on the bed. So far so good, why didn't I just wait for my wife instead of reaching out to get the phone i'll never know, but reach out I did. The chair over balanced and I and the chair fell forward I bashed the edge of the bed before falling sideways and hitting my head onto the edge of the open door. It didn't end there Oh no. I then headbutted the bedside cabinet before coming to a halt in a tangled mess, me chair cabinet and some bedcovers for good measure.
The only thing not in this tangled heap was the phone. The bang between head and door had been hard, I had obviously gathered some momentum by the time we collided but the effect whilst we had not embraced for long was extraordinary. My vision went black and maybe some would have said they saw stars all I saw was the room trying to rotate around my now throbbing head. As I said previously I try and avoid trauma because my MS shuts my body down, I go rigid and arms and legs will not cooperate. The just shut up shop pack their bags and retreat to safer climes where they won't be in danger of getting pain inflicted upon them. So by the time Heather got too me, (only a few seconds) I was in a state of rigor mortise and she needed all her strength to sort out my limbs to enable me to try and lay on the bed. I have always had good upper body strength but journey from floor to bed took some doing and exhausted me further still. When I did finally lay still on the bed and the room finally slowed down from its fast spin and came back into focus Heather checked me over. No bleeding from the brief encounter with the door but both elbows and one knee had lost their covering of skin and in their embarrassment tried to cover their nudity with red fluid.
Finally I managed to locate the phone but the allure to use it had long gone. I had only wanted it because it was new and shiny much nicer than the old ones it had replaced less than 24hours earlier. Now the shine had gone and in its place I had bruises and some bleeding elbows. Today is my second day in bed I am still tender in places I didn't know I had hurt. I am slowly getting back to being me again but I don't like the new phones yet, maybe in a couple of months when the bruises are gone.