Thursday, 25 August 2016

A big juicy marrow bone for a poorly Frazer

No words needed
Give him a big hug from me and all of us on the board XXX thinking of you and Him

Trials and Tribulations of Multiple Sclerosis

I was diagnosed over twenty years ago and over those years I have riled against each new symptom with all of my available energy. I have over come weakness by using tools, first walking sticks, one at first and the two, the same with crutches. At each turn i had to find some way to accommodate and then overcome best as possible. I have had walkers and zimmers wheelchairs and scooters and each has fulfilled a need at a stage in the progression    of my MS. I  have never had a relapse my MS is called Primary Progressive MS which means I have been in a gradual decline for over twenty years. I am now in a power wheelchair full time because I can only do a few steps with my zimmer frame, on a good day I might manage a dozen steps on a bad day zero and even getting out of bed proves a fruitless task. But we all need to get out of bed at some stage to visit the bathroom and on bad days my wife will struggle to get me into the push wheelchair to negotiate the few feet across our landing.
This brings me to the real reason of this blog post MEDICATION.

Yep I need my medication to try and enjoy and if not enjoy, to endure my day to day life. I take antidepressants to keep me from sinking into depression and they are the two most important tablets I take each day. Depression is a bitch! it will rob you of the joy of life and leave you under that black cloud unable to understand why you feel so sh*te. Depression is like a fog that never clears and everything looks murky and distant. But I found that owning up to the fact you are feeling dismal or even suicidal and seeking help is like a weight has been lifted and then a sliver of sunshine entered my gray world and eventually my days went from mono tone to full on colour. Don't get me wrong I still get bad days but they are the exception not the norm. Other tablets I take are painkillers, and one bad side effect to any pain relief is it can cause tummy problems. Constipation or diarrhea are two extremes and all manner of aspects in between. I recently changed pain relief and the first thing it did was yes stop the pain but it upset my tummy. Now as I mentioned I can barely walk and have a wheelchair and a trough floor lift, the lift was a result of falling whilst trying to get on the stairlift.
Speed is of the essence when you get the desire that you really need the toilet and I just aint speedy anymore, so after five days of trying the new tablets I had to admit defeat  and go back to my old painkillers. So the moral of this story is this, if for any reason you change or start new tablets BEWARE you could end up with unintended consequences, if you become constipated take some form of laxative and if it is the opposite stay close to the loo. 
How will they affect me
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Tuesday, 19 July 2016

Hottest Day of the Year

I have had a few days in bed, not an unusual occurrence for me but I am pleased to say I am out of bed today the day the temperature has sored to around 30%C in places. I am lucky to live near the sea here at Margate. Years ago before I got Multiple Sclerosis I would have ended a day such as this with a BBQ on the beach and a swim  with the kids at our beach hut. How times have changed! I have spent today in  a  room with the curtains drawn and two fans running trying to  keep cool. MS seems to seep the strength out of me, even writing these few words is taking my full concentration and my typing is awful spell checker is going into hyperdrive so I am signing off. Hope you have kept cool today.
Keep yourself hydrated

Friday, 15 July 2016

Sitting watching the Open Golf

Here's me sitting in my wheelchair watching the Open and reminiscing when I was a lad. I must have been about thirteen or fourteen years old and to top up my income (I worked at the local Market and at the butchers shop) I decided to give caddying a go. One of my school mates earned a few bob doing it so off I go early on a Sunday morning. I rode my bike to the local golf club and offered my services to a group of chaps and I went off carrying these golf clubs for some bank clerk.  His mates all had trolleys I was carrying his bag and giving him his clubs. All morning I trudged around with these clubs and come the 19th hole time we all went to load clubs into the cars and get paid. The Banker put his hand in his pocket and came out with fifty pence  which he gave me and walked off to his two mates as they entered the club house. As they met up I walked over and tapped him on the shoulder and he turns and is greeted by me offering his fifty pence back back. He looked puzzled and I said to him by way of explanation "You best have this fifty pence back you obviously need it more than me" His mates creased up laughing and he dug out his wallet and gave me a pound note which was the going rate and told me to keep the fifty pence as a tip. After that I used to stand in the car park offering my services by going up to prospective employers as the got their clubs out of  cars  say "Caddy Sir A Pound a Round" never saw the banker again but his two mates always laughed whenever I saw them.
Royal Troon a million miles from our local club
How to win friends and influence people
American Caddy Girls
whilst looking for a picture of a golf caddy I found the last picture of caddy girls on the DH Caddy Club all I can say is caddys were not like that in my day, maybe I will take up golf again

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Tuesday, 12 July 2016

Asda for food and counting the Ships

Big Blue Ship being attacked by tiny sailing boat
I didn't manage to get out at all yesterday, I never got out of bed until almost lunch time and then I had to watch the Grand Prix and then it was time to see Andie Murray win at Wimbledon. Then the evening involved curry and beer as I waited for France to beat Portugal. Well was I in for a disappointing evening wasn't I?  Today I woke up at 06:30am. Heather was still in the land of nod in her room so I  read for a bit and when Heather woke up we had tea and  got the day on the road. After breakfast we headed off to Asda for a bit of food stuff and I chose myself  a camera magazine then we was off for a ride to see the sea. Those of you who read my blogs will know I am always counting the Ships off Margate and this morning I managed to achieve a tally of twelve, the default number is ten so I was pleased. We rode round through Broadstairs Margate and on to Westbrook where we would normally park if we were going to the beach hut but today was windy and if anyone was on the beach they would have needed goggles to stop the sandstorm blinding them. We sat in the car for ten minutes before heading home to have late lunch. I managed to grab forty winks after and then it was time to tune in to see the new Charlie Dimmock gardening show. If people ask me how I fill my day I will tell them that time just evaporates and it does, I don't do anything and I cant do anything  and more importantly I don't care. My days of caring are way past, once I wanted to fight against the MS and carry on working but I had to accept that MS was making my life change and I found it impossible to do what I then regarded as the norm. Now looking back I don't know how I came to terms with the changes multiple sclerosis threw at me in those early day.
Enough doom and gloom, I started out writing this post last night and today has been a stay at home day. Nothing to report for today other than I have spent the day reading and our grandson came for tea and our son and his wife called in this evening.